Creation and Governance of Human Genetic Research DatabasesCreation and Governance of Human Genetic Research DatabasesSCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTHBIOTECHNOLOGY INNOVATION SCIENCE HEALTH BIOTECHNOLOGY INNOVATION SCIENCE HEALTH BIOTECHNOLOGY INNOVATION INNOVATION HEALTH SCIENCE BIOTECHNOLOGY HEALTH INNOVATION SCIENCE BIOTECHNOLOGY HEALTH HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTHBIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY HEALTH HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTHBIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY HEALTH HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTH HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTH BIOTECHNOLOGY SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTHBIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY HEALTH HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTHBIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY HEALTH HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTHBIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY HEALTH HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY SCIENCE BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY BIOTECHNOLOGY INNOVATION HEALTH SCIENCE BIOTECHNOLOGY INNOVATION INNOVATION HEALTH SCIENCE BIOTECHNOLOGY HEALTH SCIENCE BIOTECHNOLOGY INNOVATION SCIENCE OECDPUBLISHINGScientists have known for years that complex diseases, including cancer, heart disease, stroke, and diabetes, arise from a complex combination of lifestyle, environmental, genetic and random factors. Large-scale study of populations may contribute significantly to science’s understanding of the complex multi-factorial basis of diseases and to improvements in prevention, detection, diagnosis, treatment and cure. As a result of developments in biotechnology and bioinformatics, the opportunity to store and analyse increasingly large amounts of genetic data have rendered possible the creation of large-scale population databases. Genetic research, involving the use of such databases containing human genetic and genomic data, information, and biological samples, is thus becoming increasingly feasible. More recently, the databases being developed include data, information and biological samples from whole populations. Large-scale population databases which contain a significantly broader range of information about individuals also raise a number of issues and concerns. While some of these are not new, the increasing breadth and scope of such databases amplifies them. Moreover, the combination of a broader set of genetic data and personal information in these databases raises new issues about the use of such information, especially in a non-clinical or non-research context. In addition, as such databases will increasingly be international in scope and cover populations from numerous jurisdictions, new sets of questions will arise.The OECD organised a workshop in order to begin the process of considering, at the international level, policy challenges associated with the establishment, management and governance of human genetic research databases. This report provides an overview of the complex issues that were discussed at that workshop and which need to be considered or addressed, in recognition of the significant contribution that human genetic research databases could play in translating scientific advances into innovation in health.Creation and Governance of Human Genetic Research Databaseswww.oecd.orgISBN 92-64-02852-8 93 2006 09 1 P-:HSTCQE=UW]ZWY:The full text of this book is available on line via these links:http://www.sourceoecd.org/scienceIT/9264028528http://www.sourceoecd.org/governance/9264028528Those with access to all OECD books on line should use this link:http://www.sourceoecd.org/9264028528SourceOECD is the OECD’s online library of books, periodicals and statistical databases. For more information about this award-winning service and free trials ask your librarian, or write to us at SourceOECD@oecd.org.OECDPUBLISHING
